It’s been a while… so I thought I’d share a few updates:
1- I’ve healed well from the cellulitis infection. My skin is back to normal, the swelling is down, and my doctor said my blood work is “beautiful”. There are a few things that put you at risk for developing cellulitis- tissue that’s been radiated; areas with poor lymphatic drainage; and tissue that has had cellulitis before.
So, yes, I have all three of those which puts me at a decent risk for developing it again. However, I know exactly what to look for and how it feels, so I know to call the doctor right away if it does happen again. She also prescribed antibiotics to have “on hand” in case I notice the slightest bit of it starting again. I’ll keep them with me if I go out of town or anything- so I am armed and ready to fight it if it happens. As she said, if I have the meds with me I’ll probably be fine and not need them. 🙂
2- I had a long conversation with my oncologist about the clinical trial that I was doing. The medicine I was taking (Everolimus) is technically a kind of oral chemo. It’s nothing like the IV chemo I took, and the purpose of it is to make sure my body doesn’t become resistive to Tamoxifen (the hormone blocker… since my cancer was the kind that fed on hormones). But one of the results of taking it is lowering my immune system- making me more susceptible to infection (like cellulitis).
I’ve been off that study drug since I was in the hospital and we talked about it at my follow up yesterday. She feels strongly that it is worth trying again, for the potential benefits it has to keep cancer away. So the compromise is that I’ll take half of the dosage I was taking. That way, I’ll hopefully still get whatever benefits it offers, without compromising my immune system too much.
3- An unexpected result of having cellulitis was my oncologist’s concern with how this would affect reconstruction. When I was in the hospital and it was severe, she recommended that I don’t have reconstruction… ever. She was very concerned about putting me at risk for another infection and my body’s ability to heal. She said “cellulitis scares me… and I’m a cancer doctor.” I trust this woman more than anything- she already saved my life once. But that was just about the hardest blow I could’ve been dealt then. For a number of reasons, it was so incredibly hard to hear that recommendation and made for a pretty depressing couple of weeks. However, at my follow-up appointment she said she was totally impressed with how my body healed and that reconstruction is not “off the table”!!! It may have to be postponed, and we’ll know more when I talk to my plastic surgeon (he has been on vacation). So I’m feeling much better knowing that reconstruction might have to be postponed, but not out of the question.
4- Most importantly- This week, my friend has had her world invaded with this awful disease. She’s in the middle of the storm right now with her husband and it’s pretty devastating. Please pray for her, her husband, and their two children as they learn test results and make treatment plans. God will know who you mean.
Ahhh- all these life lessons about patience and love and God and faithfulness. They just keep on coming…. so keep on loving each other through it all.